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  #141  
Old 14-10-2019, 10:43 PM
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Originally Posted by Skintagain View Post
When you say risk factors with the biopsy do you mean infection or the suspicion of spreading any cancer cells.
The risk of sepsis certainly. On my NHS information leaflet there was no mention spreading cancer cells. I had heavy bleeding and clots in my urine back in May this year and thankfully after a couple of weeks and a course of anti biotics, it stopped. I am concerned that the biopsy will kick that all off again, particularly when only 1 in 4 biopsys from an MRI referral are positive.for cancer.
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  #142  
Old 15-10-2019, 06:22 AM
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I have had retention too, but now I have been given a bladder sphincter relaxant drug, and it has made a huge difference. Was your shrinkage drug finasteride, and how long were you on it?

Yes it was and also on tamsulosin - what was the drug you were on as I was want to avoid surgery if possible particularly as Iím only 55
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  #143  
Old 15-10-2019, 07:32 AM
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Yes it was and also on tamsulosin - what was the drug you were on as I was want to avoid surgery if possible particularly as Iím only 55
I have not yet been offered a shrinkage drug for my EBH, as my specialist still suspects I have cancer, and wants a biopsy first to rule it out. Sadly, it cannot totally rule it out as samples cannot be taken from the front of the prostate due to inaccessibility.

I read a case of a 78 year old man who was given a dose of shrinkage drugs. I think it was a double component of both finasteride and dutasteride. This certainly worked for him, but it took a year for anything to happen. His measured retention and flow returned to normal, and his prostate had shrunk back by 25%. This case certainly has influenced my own opinion on choice of future treatment. Finasteride will also lower your PSA reading dramatically, which is why yours is so low, I suspect.

How long were you on the finasteride? Did the specialist give you any reason why the drug didn't work, and were you given an MRI to check to see if the volume of your prostate had changed at all?
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  #144  
Old 15-10-2019, 10:32 AM
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Prostate anyone have it /had it?

I was on finasteride for almost 2 years / my psa was low anyway ie before I took the drug and it didnít shrink my prostrate. He didnít give me any reason for the failure but to be honest I was a bit shocked by the news and didnít ask.
I have stopped taking it now just in last week as if it has failed whatís the point.
I have not been offered an MRI but have had the radiology scan for urine retention- consultant seemed to take one look at that specific result and went straight for the surgery option.

I have been on tamsulosin for over 10 years.

I have an appointment again on 30 December to confirm whether I want to proceed with the surgery.
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  #145  
Old 15-10-2019, 10:46 AM
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I was on finasteride for almost 2 years / my psa was low anyway ie before I took the drug and it didnít shrink my prostrate. He didnít give me any reason for the failure but to be honest I was a bit shocked by the news and didnít ask.
I have stopped taking it now just in last week as if it has failed whatís the point.
I have not been offered an MRI but have had the radiology scan for urine retention- consultant seemed to take one look at that specific result and went straight for the surgery option.

I have been on tamsulosin for over 10 years.

I have an appointment again on 30 December to confirm whether I want to proceed with the surgery.
So I assume that you have not had other symptoms. like blood in your urine, or any regular symptoms of infections. In which case it seems that a scan was thought unnecessary. The decision for surgery, presumably is because your symptoms of retention and poor flow rate did not improve with the finasteride treatment after two years, and an assumption has been made that your prostate has not got any smaller over that period. However, they cannot tell that for certain without an MRI scan. I am not pretending to be an expert but I would ask why you weren't offered an MRI scan to check out the change in your prostate over the duration of the treatment you were given. The symptoms are one thing, but the actual size, is another and surely pertinent to any future surgery approach to ease your symptoms.
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  #146  
Old 15-10-2019, 11:10 AM
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No other symptoms- no infections - Iím going to ask about an MRI scan also checked my work health cover today and apparently Iím covered so need to do so checks first they also do 2nd opinions.
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  #147  
Old 15-10-2019, 12:04 PM
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No other symptoms- no infections - Iím going to ask about an MRI scan also checked my work health cover today and apparently Iím covered so need to do so checks first they also do 2nd opinions.
Absolutely the right thing to do, IMHO. I am also seeking a second opinion, and will be talking to the radiologist who interpreted my scan. I wish you well, and it is your right to not be treated like a patient locked into a procedural sequence where there is no escape, unless you ask the right questions and get the right and truthful responses. Sadly I have not always been told the truth about the nature and veracity of procedures, but thankfully, I was able to change things and was proven to be correct.
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  #148  
Old 15-10-2019, 04:59 PM
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Thanks SE25 thatís been helpful
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  #149  
Old 15-10-2019, 06:02 PM
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Amen to that about remaining in control. They wanted to give be a catheter angioscopy once and I was all OK then until I spotted in the pre-op brochure that this procedure had a 1 in 1000 chance of killing you on the spot, whereupon I quickly changed my tune. It turned out that they had a 64-bit CT scanner at the Royal in Glasgow so I made them use that instead.
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  #150  
Old 21-10-2019, 02:56 PM
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Latest reading 8.7, appointment this afternoon, MRI this evening.

Crisis in the NHS, I don't think so Jeremy its never been this slick.
Just got the MRI results, from PI-RADS 3 -2, in 2018 (that's 2 suspicious areas, not necessarily cancer just suspicious) to nothing report from last week.

Back to just monitoring.

I would add that since 2018 I've been taking Wellman Prostace. They claim great things for it even if it does sound like BS but it's a coincidence anyway. Think I'll carry on with it.
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  #151  
Old 21-10-2019, 05:55 PM
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I can get 2nd opinion now just started taking saw palmetto and will see if it has any effect
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  #152  
Old 22-10-2019, 08:03 PM
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Got my check up done about 3 weeks ago and thankfully all good.
However, just as the finger was about to go in, I got a cramp in my leg so started shouting in pain, had to sit up, stand etc and shake it off.
Bit embarrassing but hey ho.
I do wonder what they can find out by the procedure, is it a lump or bump of something?
Anyway, God bless us all.
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  #153  
Old 22-10-2019, 08:39 PM
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Got my check up done about 3 weeks ago and thankfully all good.
However, just as the finger was about to go in, I got a cramp in my leg so started shouting in pain, had to sit up, stand etc and shake it off.
Bit embarrassing but hey ho.
I do wonder what they can find out by the procedure, is it a lump or bump of something?
Anyway, God bless us all.
Who knows, did the doctor take his trousers off as well. Are you sure he was a doctor?
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  #154  
Old 29-10-2019, 01:17 PM
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Hi Guys

I read the BBS every day (just about), but don’t post much.

Last Thursday I was due to receive the results of my biopsy and attended the surgery at the appointed time only to be told that, due to some booking cock-up, my consultancy would be a couple of hours later. This wasn’t a problem for me and I was turning to leave when the receptionist told me I would be seeing the nurse as well as the doctor. I must have looked a bit mystified and asked why this should be so as I was only attending to hear the results of my test. The look on the receptionist’s face rather gave things away, but she covered herself by simply saying it was often the case that the nurse would attend. I went off to sit in the library for an hour or so with the almost certain knowledge that I was going to get some bad news.

This whole thing has gone from one stage to another. Following a routine check up with my doc it was suggested that I undertake a PSA. The reading came out at four and half or something, not very high at all; but he nevertheless suggested that I see the specialist. A rectal examination by the specialist came up with “some hardening on one side which ought to be investigated”, so I went for an MRI scan. The scan suggested some deformity in shape which led to the biopsy. All of these procedures were unpleasant, sometime painful and, three weeks later, I’ve still got the rather discomfiting consequences of the biopsy examination. Anyway, the doc told me that I had cancer cells present in the prostate, but they are not aggressive, just the slow growing type. This would be fine except that the samples he took indicate they are widespread and he now wants me to have a second biopsy, this time under total anaesthetic, for a more comprehensive examination. He explained that this one would be conducted not via the rectum (as had the first one), but directly into the prostate through the area of the scrotum, or thereabouts. This is a safer procedure as there is a lower likelihood of infection, but it is more involved, what with being knocked out and everything.

I asked a lot of questions, mainly to repeat what he had said so that I could be sure that I had heard him correctly, but I am still a bit confused. The first biopsy established that the cancer is there, that it is non-aggressive, but it is apparently quite widespread. The second one will indicate precisely how widespread, but what will happen then? If it is confined then I guess the advice will be just to have the regular PSA and MRI tests to establish that nothing has developed; but what if it is found to be widespread? I presume that will mean having the prostate removed or why else would the second biopsy be recommended? That will mean hospitalisation, convalescence and all that business, which I don’t relish.

TBH a large part of me wishes I had never had that marginal PSA test in the first place. I am now in the situation of having a confirmed cancer with lots more unpleasant testing and a vague prognosis. The nurse gave me reams of information that I haven’t yet had the heart read, but I suspect that I am familiar with most of it as, naturally, I have been looking up stuff anyway.

I have told my immediate family about the situation, but have not said anything to friends and more distance relatives. This is because I am presently holding a quite prominent public position (it ends on 31st December) and, should I announce it to the world, I will undoubtedly be inundated with best wishes, cards, letters of sympathy and so on from all the very well meaning individuals who, I am sure, genuinely care about my well-being. I hope this doesn’t make me seem callous, it’s just that I would feel obliged to respond and I am not sure how I might react.

Sorry if this seems like I am sounding off guys, I certainly don’t wish to complain about my treatment or the dedication of the medical staff or anything like that – they have all been great and are clearly trying to help me. But the experience is pretty grim and, who knows, if I hadn’t been told I might have just continued my good and happy life without anything to worry about?

Great result on Sunday, really cheered me up!
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  #155  
Old 29-10-2019, 07:24 PM
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Just had my reading through and I am Ok but would encourage anyone over 50 to get the test done. I was happy I did mine as I felt if it was positive it would be caught early and treatable and if negative then all good. As Nike says Just Do It
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  #156  
Old 29-10-2019, 07:32 PM
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Hi Guys

I read the BBS every day (just about), but donít post much.

Last Thursday I was due to receive the results of my biopsy and attended the surgery at the appointed time only to be told that, due to some booking cock-up, my consultancy would be a couple of hours later. This wasnít a problem for me and I was turning to leave when the receptionist told me I would be seeing the nurse as well as the doctor. I must have looked a bit mystified and asked why this should be so as I was only attending to hear the results of my test. The look on the receptionistís face rather gave things away, but she covered herself by simply saying it was often the case that the nurse would attend. I went off to sit in the library for an hour or so with the almost certain knowledge that I was going to get some bad news.

This whole thing has gone from one stage to another. Following a routine check up with my doc it was suggested that I undertake a PSA. The reading came out at four and half or something, not very high at all; but he nevertheless suggested that I see the specialist. A rectal examination by the specialist came up with ďsome hardening on one side which ought to be investigatedĒ, so I went for an MRI scan. The scan suggested some deformity in shape which led to the biopsy. All of these procedures were unpleasant, sometime painful and, three weeks later, Iíve still got the rather discomfiting consequences of the biopsy examination. Anyway, the doc told me that I had cancer cells present in the prostate, but they are not aggressive, just the slow growing type. This would be fine except that the samples he took indicate they are widespread and he now wants me to have a second biopsy, this time under total anaesthetic, for a more comprehensive examination. He explained that this one would be conducted not via the rectum (as had the first one), but directly into the prostate through the area of the scrotum, or thereabouts. This is a safer procedure as there is a lower likelihood of infection, but it is more involved, what with being knocked out and everything.

I asked a lot of questions, mainly to repeat what he had said so that I could be sure that I had heard him correctly, but I am still a bit confused. The first biopsy established that the cancer is there, that it is non-aggressive, but it is apparently quite widespread. The second one will indicate precisely how widespread, but what will happen then? If it is confined then I guess the advice will be just to have the regular PSA and MRI tests to establish that nothing has developed; but what if it is found to be widespread? I presume that will mean having the prostate removed or why else would the second biopsy be recommended? That will mean hospitalisation, convalescence and all that business, which I donít relish.

TBH a large part of me wishes I had never had that marginal PSA test in the first place. I am now in the situation of having a confirmed cancer with lots more unpleasant testing and a vague prognosis. The nurse gave me reams of information that I havenít yet had the heart read, but I suspect that I am familiar with most of it as, naturally, I have been looking up stuff anyway.

I have told my immediate family about the situation, but have not said anything to friends and more distance relatives. This is because I am presently holding a quite prominent public position (it ends on 31st December) and, should I announce it to the world, I will undoubtedly be inundated with best wishes, cards, letters of sympathy and so on from all the very well meaning individuals who, I am sure, genuinely care about my well-being. I hope this doesnít make me seem callous, itís just that I would feel obliged to respond and I am not sure how I might react.

Sorry if this seems like I am sounding off guys, I certainly donít wish to complain about my treatment or the dedication of the medical staff or anything like that Ė they have all been great and are clearly trying to help me. But the experience is pretty grim and, who knows, if I hadnít been told I might have just continued my good and happy life without anything to worry about?

Great result on Sunday, really cheered me up!
I posted before reading your post. I know there may be some crap ahead but at least you are given a chance and without that PSA things would have got worse and eventually become untreatable. Head up and keep fighting itíll all come good in the end Iím sure
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  #157  
Old 29-10-2019, 08:29 PM
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Pub Idol Pub Idol is offline
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Hi Guys

I read the BBS every day (just about), but donít post much.

Last Thursday I was due to receive the results of my biopsy and attended the surgery at the appointed time only to be told that, due to some booking cock-up, my consultancy would be a couple of hours later. This wasnít a problem for me and I was turning to leave when the receptionist told me I would be seeing the nurse as well as the doctor. I must have looked a bit mystified and asked why this should be so as I was only attending to hear the results of my test. The look on the receptionistís face rather gave things away, but she covered herself by simply saying it was often the case that the nurse would attend. I went off to sit in the library for an hour or so with the almost certain knowledge that I was going to get some bad news.

This whole thing has gone from one stage to another. Following a routine check up with my doc it was suggested that I undertake a PSA. The reading came out at four and half or something, not very high at all; but he nevertheless suggested that I see the specialist. A rectal examination by the specialist came up with ďsome hardening on one side which ought to be investigatedĒ, so I went for an MRI scan. The scan suggested some deformity in shape which led to the biopsy. All of these procedures were unpleasant, sometime painful and, three weeks later, Iíve still got the rather discomfiting consequences of the biopsy examination. Anyway, the doc told me that I had cancer cells present in the prostate, but they are not aggressive, just the slow growing type. This would be fine except that the samples he took indicate they are widespread and he now wants me to have a second biopsy, this time under total anaesthetic, for a more comprehensive examination. He explained that this one would be conducted not via the rectum (as had the first one), but directly into the prostate through the area of the scrotum, or thereabouts. This is a safer procedure as there is a lower likelihood of infection, but it is more involved, what with being knocked out and everything.

I asked a lot of questions, mainly to repeat what he had said so that I could be sure that I had heard him correctly, but I am still a bit confused. The first biopsy established that the cancer is there, that it is non-aggressive, but it is apparently quite widespread. The second one will indicate precisely how widespread, but what will happen then? If it is confined then I guess the advice will be just to have the regular PSA and MRI tests to establish that nothing has developed; but what if it is found to be widespread? I presume that will mean having the prostate removed or why else would the second biopsy be recommended? That will mean hospitalisation, convalescence and all that business, which I donít relish.

TBH a large part of me wishes I had never had that marginal PSA test in the first place. I am now in the situation of having a confirmed cancer with lots more unpleasant testing and a vague prognosis. The nurse gave me reams of information that I havenít yet had the heart read, but I suspect that I am familiar with most of it as, naturally, I have been looking up stuff anyway.

I have told my immediate family about the situation, but have not said anything to friends and more distance relatives. This is because I am presently holding a quite prominent public position (it ends on 31st December) and, should I announce it to the world, I will undoubtedly be inundated with best wishes, cards, letters of sympathy and so on from all the very well meaning individuals who, I am sure, genuinely care about my well-being. I hope this doesnít make me seem callous, itís just that I would feel obliged to respond and I am not sure how I might react.

Sorry if this seems like I am sounding off guys, I certainly donít wish to complain about my treatment or the dedication of the medical staff or anything like that Ė they have all been great and are clearly trying to help me. But the experience is pretty grim and, who knows, if I hadnít been told I might have just continued my good and happy life without anything to worry about?

Great result on Sunday, really cheered me up!
We are in your corner my friend. Stay strong!
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Old 29-10-2019, 09:10 PM
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Thanks PI, IoW and all on the boards. I am truly grateful for the friendship that comes from these forums (though I sometimes despair at the way some posters seem to find so much fault with our great team and management!).

You are all great guys.
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Old 29-10-2019, 09:30 PM
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Best of luck. My father in law is currently dying from stage 4 prostate cancer.

Deal with it early if you can.
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Old 29-10-2019, 09:42 PM
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CI i Have the same literature to read I donít have cancer and been suggested that I have the operation. I have an appointment on Thursday to seek a 2nd opinion.
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